Symptoms, Side Effects, and Winter

‘tis the season, fa la la la la, la la la la

It has now been six glorious months since I started my Lupron shots—and I’ve already complained a time or two about side effects—sorry.

So I contacted my friends John and Merle, fellow prostate cancer survivors, who have been enjoying Lupron for a year or more to check out their views. Our experiences and reactions have been as similar as if we were conjoined triplets (not a pretty fantasy).

Here are some of our rules and truisms of reality:

1.    When it’s winter you should always try to keep warm—extra layers of clothing, extra blankets, and a couple extra degrees on the thermostat, until...

2.    The hot flashes flash. Then, take off the extra layers, take off the extra blankets, and step out into the cold (if possible) and take a few deep cool breaths. It’ll help your body cool down. Once cooler, repeat steps one and two indefinitely.

3.    The trick is remembering when to do which and vice versa—really not so hard if you happen to be awake and alert (not always guaranteed). And finally...

4.    Repeat this short mantra to yourself; “The worse the side effect the more effective the medication must be.” Everybody nod in unison, close your eyes, click your heels together three times, and truly believe that this is true.

axman

How Many Hot Flashes is Too Many?

...trick question^__ you can never have enough!

Since being promoted to Lupron a couple months ago my hot flashes have gradually increased in number and intensity—at least half a dozen private mini saunas every day.

They appear mostly at night. Strangely, I wake up about a minute before it happens, then beads of sweat pop out on my forehead and the warmth moves on down to the rest of my body and for a couple of minutes I’m toasty warm all over—sometimes too toasty. I usually get up and walk around and often step outside in an attempt to cool down faster and get back to sleep.

Then, an hour or two later, it starts all over again. My posse (half a dozen friends and acquaintances who are also doing the Lupron Chemo thing) assures me my experience is pretty standard. So why am I telling you all this? Well, if you have prostate cancer and it has recurred after initial treatment, you’re likely to experience something similar sooner or later.

Lucky you! Really! If you get to the hourly steam bath stage it means you’re still alive and you’re keeping the cancer under some level of control. And the sweat is just a part of the blood, sweat, toil, and tears of life (thank you Winston Churchill for those kind words).

axman

The Long Hot (Flash) Summer

Not much sun, but the heat comes in the middle of the night

Three weeks after my Lupron shot I don’t feel much different than I did before. There is one notable exception – the dreaded hot flash.

During the day I keep pretty busy writing, building, pouring concrete, cutting weeds, and other manly activities with nary a flash of hot. That’s good. But once I go to sleep I can count on at least one and usually two bouts with heat and sweat during the night. Worse yet, it wakes me up-so I get up, change my jammies, go to the bathroom, turn my pillow over to the dry side, and try to get back to sleep. I usually succeed.

None of these bouts lasts more than a few minutes and they’re certainly not unbearable. My wife just smiles and says, “See, I told you what they were like”. Mostly it’s an annoyance and results in a lot of extra laundry the next day.

I’m sure many of you have more and worse side effects so this will be my last time complaining about this particular one. Probably. But if I should ever have a new one...

axman

The Next Step – Lupron

With a shot in my backside I was launched into a new phase of prostate cancer treatment...

I knew this day would come sooner or later (I’d prefer later‑‑given a choice). My substitute oncologist (Dr. G) recommended a change in medication because my PSA has gone up significantly every three months for almost a year on the old hormone meds. Lupron was her drug of choice. It’s stronger than the hormones I’ve been taking and is supposed to lower my PSA in a short time (stay tuned for my October PSA test). I know many thousands are already using Lupron, so let me know what your experiences have been.

The shot is good for three months so I don’t have to take so many pills—that’s a plus. But the side effects may be a little stronger and stranger. I can expect hot flashes, some bone pain, headaches, depression, and maybe weight gain (I can probably fight those last two). On the inside my bones will likely lose mass. So I’ll take more calcium, more D3, spend time in the sun, and get lots of exercise. Fatigue in another side effect but I’m already tired so may not even notice.

I intend to let the summer unfold, bask in the sun, keep busy building more rooms onto the house, and continue doing all the things on my Bucket List.

axman